Hope4Harper CDKL5

Hope4Harper was created in honor of our daughter, Harper Elle Howard, who has a rare genetic mutation known as CDKL5. There are fewer than 500 diagnosed cases worldwide like mine. CDKL5 consists of early onset of intense difficult to control seizures, along with, gastrointestinal, cardiological, bone, visual, and developmental issues. I have been prescribed intense therapy and seizure control to aid in successful mental and physical development. (www.CDKL5Info.com)