Rare Disease Legislative Advocates

RDLA is for rare disease organizations or individuals who are or who want to be legislative advocates.

RDLA is open to all members of the rare disease community with an interest in sharing ideas and advocating for the introduction or enactment of legislation. RDLA was created as a clearinghouse of ideas designed to bring together rare disease organizations active on the Hill to share information around common causes. It does not promote any specific policy, but provides support to all rare disease organizations seeking introduction/enactment of legislation. RDLA meetings and the website are an educational resource and a platform for individual organizations to promote their legislation.